Breast Density Mammography Center Survey

The Pennsylvania Breast Cancer Coalition is conducting a statewide survey to better understand how the breast density notification law is being implemented. We'd greatly appreciate your time and insights in completing this short survey so that all of us -- policymakers, consumers and healthcare providers -- can educate women as to their breast health.

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* 1. What type of entity best describes your organization? (Choose all that apply):

Mammography center based at a hospital.

University-based medical center.

Free-standing Diagnostic Imaging Center

Women's Cancer Center

Other (please specify)

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* 2. Please list all mammography facilities that you represent:

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* 3. Please check the statement that applies to you:

We are currently reporting breast density findings in our mammography notifications to patients.

We are planning to report breast density findings in our mammography notifications to patients.

Other (please specify)

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* 4. How are breast density findings cited in your mammography notifications to patients? (Choose all that apply):

We use the BI-RADS four-tiered breast composition categories.

We include the notification language cited in the law (Act 86). (See below)

We have developed our own breast density reporting language.

Not applicable, we are not reporting breast density findings at this time.

Other (please specify)

NOTIFICATION LANGUAGE CITED IN ACT 86

"This notice contains the results of your recent mammogram, including information about breast density. If your mammogram shows that your breast tissue is dense, you should know that dense breast tissue is a common finding and not abnormal. Statistics show many women could have dense or highly dense breasts. Dense breast tissue can make it harder to find cancer on a mammogram and may be associated with an increased risk of cancer. This information about the result of your mammogram is given to you to raise your awareness and to inform your conversations with your physician. Together, you can decide which screening options are right for you, based on your mammogram results, individual risk factors or physical examination. A report of your results was sent to your physician."

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* 5. Do you use volumetric breast density evaluation software (e.g. Volpara, iCAD, Quantra)?

Yes

Considering it

Other (please specify)

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* 6. Do you discuss breast density category findings with women screened at your facility?

Yes, we do discuss breast density findings with women.

No, we provide breast density findings to women in a result letter.

No, we do not discuss breast density findings with women.

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* 7. Do you provide supplemental literature that explains breast density? (Choose all that apply):

Yes, we have developed our own pamphlet, flyer, web links, or brochure. (Please send us samples)

Yes, we use a prepared publication. (Please send us samples)

Web link of publication(s) you use: (if applicable)

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* 8. Who is responsible for educating the woman about her breast density findings? (Choose all that apply):

Radiologist at the facility

Primary Care Physician/OB GYN

Radiologist/Mammography Center includes educational material on breast density to the physician receiving the report on his/her patient (e.g. explanation of new BI-RADS categories)

Pamphlets on breast density are handed to women or made available at the facility

Other (please specify)

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* 9. What is your standard screening breast imaging technique for mammograms? (Choose all that apply):

Film

Digital

3-D (Tomosynthesis)

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* 10. Which of the following types of mammography do you offer at your facility for screening women? (Choose all that apply):

Automated Breast Ultrasound (ABUS)

Technologist-performed handheld screening ultrasound

Physician-performed screening ulrasound

Magnetic Resonance Imaging (MRI)

Dedicated gamma camera breast imaging (e.g. BSGI or MBI)

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* 11. If additional screening tests are recommended to a patient with dense breasts, are you having difficulty getting insurance companies to cover the cost?

Yes

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* 12. Are there any challenges you are facing discussing breast density findings with women? If so, any suggestions on how to address them?

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* 13. Contact and Facility Information:

Name:

Title and Organization:

Address:

Address 2:

City/Town:

State:

ZIP:

Email Address:

Phone Number:

We are collecting samples of mammography reports that cite dense breast tissue findings and examples of supplemental literature on breast tissue density given out by facilities. We'd be very grateful if you'd send us examples and this can be done one of three ways:

FAX to PBCC at: 717-769-2131
Email or scan to: Michelle@PABreastCancer.org
Mail it to: PBCC | 2397 Quentin Rd., Suite B | Lebanon, PA 17042

THANK YOU!

Pat Halpin-Murphy
President and Founder of the PA Breast Cancer Coalition